We all know about the positive and recommended contact with children, hugs, caresses, massages and kisses. It is, unless you are one of the fourteen people in the world who suffer from a very strange disease, in which contact and hugs annoy greatly.
It is the disease that Casen suffers, a baby that can't be cuddled, which is known as congenital glomovenous malformation and that makes your blood vessels, your skin and your muscles harden and do it more and more as you grow.
This progressive hardening is painful, so much that the mere act of hugging or "snatching" it can cause suffer bruising in areas of skin that is more rigid and that more pain is produced and that the same increase in pain causes breathing problems. In fact, if you look at the picture, you can see that his chest is very bruised.
The mother noticed her son's condition when, at birth, he noticed neck injuries. Casen (and his mother) were lucky enough to receive a diagnosis when he was only nine weeks old (such strange diseases are often unknown to many doctors), at which time a geneticist was able to explain to the parents what was happening to their son already what was due: Casen lacks a gene that we do have the rest of humans, whose absence causes the disease.
If the hardening of the skin, muscles and blood vessels were not treated properly, it would cause heart failure and from now on many more problems that you can easily imagine if we talk about a body that gradually loses elasticity.
Luckily, in Brussels there are specialists who know the disease and have the treatment Casen needs. The parents, in fact, are considering moving from the US to the aforementioned city to save their child.
From here we can only hope that Casen can receive the treatment he needs and that he can lead a life as normal as possible or, at least, A happy life, which is not little.
Via and Photo | Telecinco In Babies and more | The strange case of the baby born with white blood, He saved his daughter's life by ignoring the recommendations of letting her cry, Prenatal risk factors, Perinatal risk factors
